The Tale of an ALS Survivor #20
Placebo or God ?
My vision of wholeness was inside. I knew there were two of me and my dependence on my inner self is what kept me sane during this unbelievable journey.
The day my daughter and I left the neurologist office, remember, I told her he was a liar, well, he wasn’t a liar, but I still wasn’t going to believe him. Then I started to believe that I had ALS, a physical disease that he knew well, but he didn’t know me well, we just met.
Everyone is a survivor in this world, it’s the only way for us to have food and shelter. I’m just coming out of a world where my food was my thoughts and my shelter was what I did with those thoughts. I had lost the use of my physical body, but not my Faith or Mind.
Placebo: a harmless pill, medicine, or procedure prescribed more for the psychological benefit to the patient than for any physiological effect:
McFinn Placebo: I am a spiritual being having a physical experience by the grace of God. I live in Faith that my life has Purpose and I am only starting to fulfill it.
GOD:(in Christianity and other monotheistic religions) the creator and ruler of the universe and source of all moral authority; the supreme being.
McFinn’s God: I and my Creator are of One Source. I am fully in Gods presence at all times. My Life’s actions are my Prayer and I am Heard.
Folks ask me, what did you do to reverse your ALS. My answer, most likely, the same treatments you are taking. We are all different in how we got ALS and we will all be different in how we can come out of it.
The day Bret tied me to him and walked me and my arm twitched, was the beginning of my home stretch to the finish line. Just that little twitch, pumped me up so high,I new that day was the beginning of my Return. Bret was much calmer, but not me!!
I had starts and stops, but not anymore. That day proved to be the beginning of the END to this devastating disease.
I have held on to my story for fifteen years now, not wanting to share it because of fear of rejection. That’s all over.
I do not have the answer to: why I got ALS, but I do have an answer to what am I going to do with this gift of reversal. I am part of a family of folks who families where directly affected by this disease. We are an outpost of HOPE. Contact us for support. info@everythingals.org
1/5/07 Spring Hill physical therapy:
McFinn has continued to make good progress walking with his cane, he still has episodes of balance loss, has not fallen able to catch himself, is able to reach low shelves without pain.
treatment plan: stretching, range of motion, balance coordination and movement activities.
Now let’s get to the Juicy part of my journey.
My first time going out to dinner on a Date with Mona. I have been waiting for this for over a year now. Mona drove, she let me off at the front door to the restaurant. I was able to get up the two steps, but I could not turn the nob of the door. As I stood there I started to cry, I had come so far, but still a ways to go. A kind man stood up from his table and came to the door to greet me and let me in. I am in tears remembering this.
I do not ask WHY ME any longer. I know why ME. BECAUSE I’M HERE TO DO BATTLE FOR ALL OF YOU WHO NEED HOPE!!!
2/4/07 Spring Hill physical therapy: McFinn has noted increased difficulty in walking, weakness in left knee, using knee brace when walking, unable to lift arms above 80°, ability to wait shift is present with cueing and holding on to walking rail. McFinn has fallen recently which compromised his confidence, as concern over progress, hands are numb and difficulty closing. treatment plan: balance coordination and gait training, range of motion, stretching instruction in home exercise program.
God or Placebo BOTH, is My Experience!!
