Life of an ALS Advocate

The Many Hats of McFinn

McFinn Lovere
3 min readJul 26, 2021

Being an advocate for others less fortunate than yourself can be rewarding and consuming!!

My work with brings me in contact with folks all over the world. I am thankful I can understand their needs because, I’ve been there. I reversed my ALS fifteen years ago.

Once you commit to being of service to PALS you have to understand you have entered, 24 hours a day, seven days a week, three hundred sixty five days a year, world of need.

I needed 24 hour care when I had ALS. I needed someone more than my family to depend on for my sanity.

Now, I am that someone who calls out of the blue to see how your day is going. I am the one doing the research to help find the answer to your challenges. I am the one who can not just forget about those I have met that need support.

My challenge is keeping a balance between my home life (wife), the farm, my children, my community and my advocacy for ALS folks.

I am doing quite well balancing out this challenge. I watch what I commit to and I take naps in between.

This is the other side of McFinn

Happy Wife Happy Life !!
My favorite treat
Open all year around for guests
I have been cutting my firewood for 45 years
View of our village. I have a commercial drone pilot license
I have been hiking weekly for nine years with my fellow Philosophers!!
I bring my wife Mona all the compost she needs for the garden
Clearing brush for fire protection.
I love being at the ocean in a storm
Our home is a gathering place for our community.
I invented the most sophisticated filtration system in the world
Not only for tobacco use
I Love Our Planet
I find my SELF in Nature !!

I advocate for others because, I do it for myself first. I have a wonderful life because when I look in the mirror, I feel my Spirit looking back at me and I like it’s company.

Thanks for coming along on The Adventure of an ALS Advocate!!



McFinn Lovere

Both arms and both legs paralyzed. 2 fingers left to control the wheelchair. Dr Bedlacks 42nd ALS reversal at Duke University ALS Clinic.